O Holy Night

She'd stand tall and brave but I could always see that she was nervous. She'd grip the handle of her cane like a child grips their friends arm while giving an indian burn. You know when you twist your hands in the opposite direction of each other? I'd start to play the intro to the song, more nervous that she wouldn't know when to come in and start singing than I was of messing up on the piano. You never knew when she'd start at the right time and get the words right or when she'd blank out and now we know why. She'd start to sing, "O Holy Night" and suddenly it was like you couldn't hear anything else. It's like the song says, "o holy night the stars are brightly shining." That is what her voice sounded like. It was bright. You know when you drive up to tahoe and you take your first breath of fresh tahoe air when you step out of the car? Or the first step out into the cold night air during winter? Its clear and sharp. Its fresh and appealing. It often times will take your breath away for a split second. That is what her voice was like. Or in the song when it says, "fall on your knees, o hear the angels voices!" I can't imagine the sound that people must have heard when Christ was born. The sound of the heavens rejoicing over his birth. But I do imagine it was somewhat like her voice. Loud and powerful but soft and gentle all at the same time. Its like almost couldn't expect it looking at her because she was just small and nervous. But when she hit the high note of the song it would move you to tears. To hear such a sound come out of a child. I try to describe it to my husband. I try to convince him that I don't just remember it to be a pretty sound because she's my sister or because I miss her voice. It really was remarkable.

I beat myself up sometimes for being so very selfish. For wasting the years that she had a voice feeling sorry for myself or even for feeling sorry for myself today over different things. When we were kids, Catie would sing and I would play the piano for her to sing along. It wasn't a big deal, we were a team. But as a kid I can remember being so frustrated that it was mostly about Catie. My blind sister with the pretty voice. I was complimented on my piano playing. Always. But it was never like Catie's voice. I'd feel like JUST the piano player. Just the person that tried so hard to help her memorize the words to her songs and tried so hard to learn the songs so I could play along for her. Like, I did well BUT. But this part should be more like this, or this part should be played like this person plays. I felt like all the people that write books about having a special needs sibling and how playing piano is good but singing when you're blind is a gift. Like i was just a shadow that was attached to the main event. I just wanted to be acknowledged. Noticed. and not taken for granted like playing piano for someone who was mentally challenged was an easy thing for a 12 year old to do. I wasn't treated bad or neglected. I just felt like I wasn't special because nothing was wrong with me. Sometimes I feel like I come off as so bitter about it. I really used to be. Now it just makes me sad. It makes me sad that I had those feelings and I let those feelings turn ugly and make me jealous of Catie when I could have just enjoyed it. I could have said who cares! and play for her and listen to her sing. I wish I could have known that her voice was going to be taken away and that those few years we had as our little team together were going to be so short. Back then I wanted it to end. I'd wish that I wouldn't have to be her pianist. But now I just hate myself for that. I'd give anything to be able to sit down with her and play while she sang her heart out.

I was playing some Christmas songs the other day and started playing O Holy Night. Thats what brought all of this to mind. I just started sobbing. I could still hear her voice so clearly in my head while I played each note. It really was angelic the way her little voice carried.. When I close my eyes and listen to it in my mind I really can picture angles rejoicing on a clear starry night. I wish so badly that I didn't have sad memories attached to it. That I didn't waste what I had no idea to be a short time that the two of us would share together. I miss it.

"Take Care"

I'll take care of you oh
Have faith that when you call my name
I'll be there

It was a straight faced lie
I believed
It was a straight faced lie
You would ever leave me
But for now I'll keep believing your words
And soon enough my strength will return

I'll take care of you oh
Have faith that when you call my name
I'll be there
I'll be right there
So keep breathing oh
Keep that sweet heart of yours beating
I'll be right there
I'll be right there

Let me draw the blinds for you
You can watch the sunset from
The bed in your hospital room
Until you're sleeping
I'm sure
I don't understand how I found a love so pure

I'll take care of you oh
Have faith that when you call my name
I'll be there
I'll be right there
So keep breathing oh
Keep that sweet heart of yours beating
I'll be right there
I'll be right there

Don't lift a finger
Let me show you
The only way to let this go
Don't lift a finger
Let me hold you
Hold you here until the pain it has all gone

I'll take care of you oh
Have faith that when you call my name
I'll be there
I'll be right there
So keep breathing oh
Keep that sweet heart of yours beating
I'll be right there
I'll be right there

I'll take care of you oh
Have faith that when you call my name
I'll be there
I'll be right there
So keep breathing oh
Keep that sweet heart of yours beating
I'll be right there
I'll be right there
I'll be right there
I'll be right there



All time favorite band singing one of my favorite songs. It was written as a love song to the writers girl, but sometimes, on days like today I wish I could sing it to Catie. Some days she just looks like she needs to hear it.. from one sister to another

All Worth It

We were standing in the store like little kids begging each other for Mickey Mouse and Buzz Lightyear party hats. Kyle and I must have looked like a couple of kids up to no good with no where else to go at 10:30 on a Monday night other than WalMart. Truth is we felt like little kids.. filled with so much excitement for an upcoming birthday party. We finally decided on decorations and then headed straight for the toy isle.. "OMG Kyle, he NEEDS this!!" I'd shout, looking at the fisher price play kitchen. "No babe, he needs THIS!" Kyle pointed to the giant lego box with the set of Andy's Room and all the Toy Story Toys.

We were picking out gifts and decorations for our sons first birthday!! You probably can't see it in the way I type but I am smiling SO very big right now.

What a gift!! To be given a baby. To carry that baby to term, deliver that baby with no serious complications and watch that little baby grow into a toddler over the last year. Not everybody is given that gift and I don't take it for granted. I find myself teary eyed every night as I pray over my little boy and tuck him into bed. This little boy is my life, my everything. He was the size of a poppy seed when God used him to enlighten my eyes and help me see Him for who He truly is. My Savior. A POPPY SEED!!!!

When I stop and think about the last year and all that Kyle and I have experienced as new parents, good and bad, I feel so completely exhausted. I'm not going to lie. I feel so enormously happy and thankful and content and then those sharp pains remind me that my body never fully healed properly from my 24 hours of labor and I feel tired, worn out and "mom-like" along with happy, thankful and content. Thats alot of things to be feeling at once.. I think. Either way, I wouldn't trade it for the world!! Standing in a WalMart picking out the right shade of green balloons for my SONS FIRST BIRTHDAY with my HUSBAND makes every empty bank account, stretch mark, new tooth, tear, poopy diaper, frazzled moment, future surgery, long night, interrupted hokey pokey time, lack of hokey pokey time and everything else that we have experienced for the first time in our lives MORE than worth it. My baby boy is going to have a birthday and Kyle and I are the blessed parents who get to humbly be a part of this little dudes special day.

Our Little Monster is Turning ONE!